Dear Friends,
Thank you for all your best wishes on Olivia’s surgery day. She is doing better today. At 5 am yesterday we arrived at St Mary’s hospital to admit Olivia for spinal surgery.

After spending 3 hours under full anesthesia Dr Feldman had to abort surgery. The surgical team discovered previously unknown neurological issues prior to the first incision and the team decided to postpone the spinal surgery until further testing can be completed.

Words cannot describe how thankful we are for all the support that we received throughout this difficult journey. It is far from over, but we trust Dr Feldman and his team. We will follow their advice wherever it takes us.

We will keep you all updated on the situation and let you know when we have a new date for surgery.

Welcome aboard the rare disease journey.

There’s more time come.

Warm regards,
The Lugani Family