** URGENT CALL TO AID- OLIVIA LUGANI – SURGERY FUND **
Dear Friends, Our daughter Olivia was born with a very rare genetic bone disease. She is now 10 years old, weighs 10kg, is the size of a toddler wearing clothing of a 2yr old, measuring [...]
Difficult Road Ahead
Dear Friends, Olivia is soon turning 10 years old. During these precious, though challenging years of her life, I have compiled a list of world-renowned doctors to support her ongoing medical needs, ie Neurosurgeons, Dentists, [...]
Approval in our local town for a handicapped play area!
AMAZING SUCCESS TODAY!! After my proposal to the Mayor's office, today I was able to confirm our town will install the 1st ever inclusive play area for children in wheelchairs! I am so proud [...]
The World Unknown
Dear Friends, As many of you know, Olivia has a rare genetic condition called Goldblatt Syndrome that affects only 17 other known patients world-wide. She is 8 years old, weighs 10kg and measures 67cm. As [...]
Corset Mould Fitting
Olivia, the Champion! So proud of my girl! She conquered yet another gruelling 45 minute experience of plastering a thick mould to her upper body in order for the fantastic team at Hospital Poincaré, [...]
Endless search- Fundraiser- PERMOBIL TWIST
Dear Friends, I've been searching for years for an adapted manual wheelchair to assist Olivia with manoeuvring around the apartment. Since moving to France, some doors have certainly opened, but I have to bang [...]
May 2020 – Coronavirus- #Stayhome, #Staysafe, #Quaranteam #Restezchezvous
Greetings to all our Friends and Family around the World. May 2020 We wanted to let you know our family is doing well as we #STAYHOME for the 10th week of [...]
Genetic Testing – The Endless Pursuit
FEBRUARY 2020 •As many of you know, Olivia has a rare genetic condition called Goldblatt Syndrome that affects only 17 other known patients world-wide. She is 7 years old, weighs 10kg and [...]
Our New Normal- Life in Paris- January 2020
Life in Paris Our move to Paris came as a welcomed surprise in Summer 2019. After extensive research, we made an informed decision to select a french school in [...]