Merry Christmas Everybody!
December 24, 2016 Merry Christmas, everybody! The girls are so excited Santa is coming! Olivia was feeling quite poorly the past few days. Had to call the ambulance [...]
Another MRI at Great Ormond St Hospital
December 5, 2016 Today, I had to take Olivia to Great Ormond Street for an important flexion/extension neck MRI. I was very anxious about it all day. I explained [...]
Happy Halloween everyone!
October 31, 2016 Happy Halloween everyone! Halloween is the girls' 2nd favourite holiday. Dressing up and eating candy...what more to life is there? Thankfully, Grandma was here to keep [...]
First MRI under general anaesthesia
October 2, 2016 This morning we had to arrive at Great Ormond Street Hospital at 6am with our precious Olivia for her first MRI under general anaesthesia. Thank goodness [...]
Appointment with a new physio
May 8, 2016 Today was Olivia's first session with a new Physiotherapist recommended by several moms whose children see her weekly. She makes therapy fun! Olivia responds very well to [...]
Visit to Geneticist
January, 2014 In January 2014, in the hope of getting some answers, we traveled to visit a well-known Geneticist who had seen other cases of Goldblatt Syndrome based at [...]