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Thanks for visiting my website! I would love to share with you my journey of having an extremely rare form of Dwarfism. Only 18 kids have it worldwide!

You can FOLLOW my progress on videos, READ mummy’s BLOG about the journey, 

and find information about Goldblatt Syndrome on THIS page.

Please SUPPORT my medical equipment needs on the FUNDRAISING page.

LOL from the bottom of my heart.
Olivia xo

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OLIVIA IN THE PRESS

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A HUFFINGTON POST article was published by our friend Chris Lydon regarding Olivia’s rare disease and the journey we have experienced. You can read it HERE. Please SHARE on your social media channels!

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GoFundMe Fundraise for Olivia

[/fusion_text][fusion_imageframe image_id=”2883|full” max_width=”250px” style_type=”” blur=”” stylecolor=”” hover_type=”none” bordersize=”” bordercolor=”” borderradius=”” align=”center” lightbox=”no” gallery_id=”” lightbox_image=”” lightbox_image_id=”” alt=”” link=”https://www.gofundme.com/olivia-lugani-recolte-de-fonds-pour-equipements&rcid=r01-155802348761-8628d0db18754c40&pc=ot_co_campmgmt_w” linktarget=”_blank” hide_on_mobile=”small-visibility,medium-visibility,large-visibility” class=”” id=”” animation_type=”” animation_direction=”left” animation_speed=”0.3″ animation_offset=””]https://olivialugani.com/wp-content/uploads/2019/05/gofundmelogo.jpg[/fusion_imageframe][/fusion_builder_column][fusion_builder_column type=”1_6″ layout=”1_4″ spacing=”” center_content=”no” hover_type=”none” link=”” min_height=”” hide_on_mobile=”small-visibility,medium-visibility,large-visibility” class=”” id=”” background_color=”” background_image=”” background_position=”left top” background_repeat=”no-repeat” border_size=”0″ border_color=”” border_style=”solid” border_position=”all” padding_top=”” padding_right=”” padding_bottom=”” padding_left=”” margin_top=”” margin_bottom=”” animation_type=”” animation_direction=”left” animation_speed=”0.3″ animation_offset=”” last=”no” element_content=””][/fusion_builder_column][fusion_builder_column type=”2_3″ layout=”2_3″ spacing=”yes” center_content=”no” link=”” target=”_self” min_height=”none” hide_on_mobile=”no” class=”” id=”” background_image_id=”” background_color=”” background_image=”” background_position=”left top” undefined=”” background_repeat=”no-repeat” hover_type=”none” border_size=”” border_color=”” border_style=”solid” border_position=”all” border_radius_top_left=”” border_radius_top_right=”” border_radius_bottom_left=”” border_radius_bottom_right=”” box_shadow=”no” box_shadow_vertical=”” box_shadow_horizontal=”” box_shadow_blur=”” box_shadow_spread=”” box_shadow_color=”” box_shadow_style=”” padding_top=”” padding_right=”” padding_bottom=”” padding_left=”” margin_top=”10px” margin_bottom=”0px” animation_type=”” animation_direction=”left” animation_speed=”0.3″ animation_offset=”” last=”no”][fusion_text columns=”” column_min_width=”” column_spacing=”” rule_style=”default” rule_size=”” rule_color=”” hide_pop_tinymce=”” hide_on_mobile=”small-visibility,medium-visibility,large-visibility” class=”” id=””]

In July 2019, Olivia Lugani is moving to Paris to start a new life with her family.
She will have a new home and more challenges at her new French school.
Due to her small size, no school in Paris was equipped with adequate equipment to meet her needs. This means special equipment must be built and installed in school for Olivia to be able to follow the curriculum with her sisters and peers. Everything is privately funded.

We need your help.

See the SUPPORT tab for a list of equipment, for which your donation will help provide.

———–

Olivia suffers from a rare genetic condition called Goldblatt Syndrome. As a result, due to her neck instability and severe spinal curvature, Olivia experiences from pain everyday. She is unlikely to ever walk independently. Yet, she refuses to ever let her condition define her. We are raising money for her essential equipment needs, as her disability restricts her from many things. The fundraising success will increase her quality of life.

Any donation will be appreciated.

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 Fun Family Afternoon – Fundraising Event

Our first fundraising event, Fun, Family Afternoon, was held in June, 2017.  We are very thankful to those who supported us on the day. Goldcrest Land generously sponsored the worthwhile event. Our aim was to raise awareness of Olivia’s rare condition and provide an afternoon of fun. Photos from the event depict the joyous occasion had by all. Please see the beautiful photo gallery by Sabbou Photography by clicking on our gallery below. The children’s entertainment was donated generously by PERFORM, Bedazzled Events, and Kelly Sparkles. Goodie bags by Kidsorted, the local black book for families.

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Meet my Family

ABOUT ME

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I have two sisters, one older and one younger. I am sandwiched in between! They play with me and make me smile when days can be tough. I have a lot of pain and many doctor’s appointments so doctors can check on me. Mommy and Daddy give me cuddles to make me feel better.

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The Syndrome

WHAT IT IS & HOW I DEAL WITH IT

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I’m an extremely clever girl, but I suffer everyday from pain. The main symptoms of Goldblatt Syndrome are short stature, joint laxity, muscle weakness, narrow chest, and dentinogenesis imperfecta. Mommy takes me to appointments with doctors all over the world to help me feel better. I have Physiotherapy, Occupational Therapy, Hydrotherapy and Play therapy every week!

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Olivia’s Blog

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