Endless search- Fundraiser- PERMOBIL TWIST
Dear Friends, I've been searching for years for an adapted manual wheelchair to assist Olivia with manoeuvring around the apartment. Since moving to France, some doors have certainly opened, but I have to bang [...]
Endless search- Fundraiser- PERMOBIL TWIST
Dear Friends, I've been searching for years for an adapted manual wheelchair to assist Olivia with manoeuvring around the apartment. Since moving to France, some doors have certainly opened, but I have to bang [...]
May 2020 – Coronavirus- #Stayhome, #Staysafe, #Quaranteam #Restezchezvous
Greetings to all our Friends and Family around the World. May 2020 We wanted to let you know our family is doing well as we #STAYHOME for the 10th week of [...]
May 2020 – Coronavirus- #Stayhome, #Staysafe, #Quaranteam #Restezchezvous
Greetings to all our Friends and Family around the World. May 2020 We wanted to let you know our family is doing well as we #STAYHOME for the 10th week of [...]
Genetic Testing – The Endless Pursuit
FEBRUARY 2020 •As many of you know, Olivia has a rare genetic condition called Goldblatt Syndrome that affects only 17 other known patients world-wide. She is 7 years old, weighs 10kg and [...]
Genetic Testing – The Endless Pursuit
FEBRUARY 2020 •As many of you know, Olivia has a rare genetic condition called Goldblatt Syndrome that affects only 17 other known patients world-wide. She is 7 years old, weighs 10kg and [...]
Our New Normal- Life in Paris- January 2020
Life in Paris Our move to Paris came as a welcomed surprise in Summer 2019. After extensive research, we made an informed decision to select a french school in [...]
Our New Normal- Life in Paris- January 2020
Life in Paris Our move to Paris came as a welcomed surprise in Summer 2019. After extensive research, we made an informed decision to select a french school in [...]
The Day after the Storm
Today is the day after Olivia's difficult experience of enduring her second bone strengthening Bisphosphonate treatment at Evelina Children's Hospital. These are the thoughts that pass over me. In the weeks leading up to the [...]






