Dear Friends,

​Our daughter Olivia was born with a very rare genetic bone disease. She is now 10 years old, weighs 10kg, is the size of a toddler wearing clothing of a 2yr old, measuring 67cm. There is no known gene to diagnose her condition. 

Due to her condition, Olivia cannot walk, has muscle weakness and severe S-shaped scoliosis, which is impacting her organs. She is now bed-ridden, must lay down in permanence, cannot attend school with her friends, cannot sit upright, cannot enjoy the life of a 10 year old girl. Her spinal cord is pinched, her lungs, kidneys, and urinary tract are all being negatively affected by the curved spine. We have to TAKE ACTION NOW or she will become paraplegic and eventually her spine will cause irreparable damage to her organs. We have no other option than to intervene surgically NOW. 

We are in a dire situation where doctors in France cannot treat her curved and compressed spine, as they do not have enough experience with rare conditions to treat her complicated case. Thankfully, we were able to find a spinal surgeon who has experience with rare spinal deformities and has confidence that he can surgically repair Olivia’s scoliosis. His name is Dr David Feldman at the Paley Institute in West Palm Beach, Florida.

We are reaching out to you ALL to ask for donations to fund Olivia’s URGENT surgery. The cost of the surgery is over $200,000. All proceeds to this GOFUNDME page will solely benefit Olivia’s surgery.

TO MAKE A DONATION, please go to : https://gofund.me/a227e3b9

Thank you for your love and continued prayers. 

Stephanie, her devoted mom