Fundraising page with GOFUNDME for Olivia Lugani to continue to raise money for her on-going medical expenses (click box to right).
Thanks to all of your donations, we have been able to save Olivia’s life. Her spine was collapsing and she was losing all mobility in her limbs. She was in a constant state of unimaginable pain. On February 13, Olivia’s decompression and fusion surgery was a success!
All of your contributions make a huge difference.
The surgery was performed by Dr. David Feldman at the The Paley Institute in Florida, USA. Olivia and I are extending our stay here to offer her the post-operative treatment that the Physiotherapy team can offer. The recovery plan is very expensive and we are asking for continued donations to pay for some of it. https://paleyinstitute.org/blog/physicians/david-feldman/#/
All proceeds from her fundraising page will be used to pay for Olivia’s medical expenses. To make a donation, please go to : https://gofund.me/a227e3b9
All donations are greatly appreciated and we are grateful to everyone who helped give our dear Olivia (@agirlinabillion) a chance to live the life she deserves.
Olivia was clinically diagnosed in 2013 after 1 year pursuit of an extremely rare, life-limiting genetic form of Dwarfism called Goldblatt Syndrome (aka Odonto-chondro-dysplasia/ Spondylo-metaphyseal dysplasia). After thorough investigations by American, Swiss, French and British doctors, we still have not been able to diagnose Olivia through her DNA, only with X-ray images. To-date, there are 18 children worldwide who are diagnosed with a similar condition.
History:
Olivia is 10 yrs old and suffers from muscular and joint pain daily and is unable to walk. Due to her condition, Olivia has a severely curved spine and neck (C1/C2) instability. To ensure her safety, an orthopaedic surgeon based in America is able to perform a life-saving surgery.
The disease does not allow Olivia’s muscle strength to develop and her severe spinal curvature and heavy weight of her head on her 67cm, 10kg body, cause her to be unbalanced, therefore she cannot walk independently.
We live each day, day-by-day. Due to the rareness of her life-limiting condition, Olivia’s future is uncertain. It is important that we offer her all the support she needs and the best quality of life.
Please DONATE today to support Olivia’s needs. She would greatly appreciate your contribution.
Donations can be made to our GoFundMe campaign using most credit and debit cards. Any donation is welcome and will solely benefit Olivia.
CLICK HERE TO MAKE A DONATION.
PLEASE REGISTER on Olivia’s website www.olivialugani.com to follow her progress.
SEND AN EMAIL: stephanie@olivialugani.com
Thank you for your support!
Olivia Lugani
