Dear Friends, Olivia is scheduled to have her spinal surgery on Monday, Jan 9th. She is still recovering from her neurologic procedure. She is still experiencing pain and discomfort. The weakness in her lower limbs [...]
Dear Friends, Thank you for all your best wishes on Olivia's surgery day. She is doing better today. At 5 am yesterday we arrived at St Mary's hospital to admit Olivia for spinal surgery. After [...]
Dear Friends, Our daughter Olivia was born with a very rare genetic bone disease. She is now 10 years old, weighs 10kg, is the size of a toddler wearing clothing of a 2yr old, measuring [...]
September 7,2022 For the past 2 months I've felt like a race horse at the starting gate awaiting the clanging sound of the gates slamming open. On July 21, 2022 we were told by a [...]
Dear Friends, Olivia is soon turning 10 years old. During these precious, though challenging years of her life, I have compiled a list of world-renowned doctors to support her ongoing medical needs, ie Neurosurgeons, Dentists, [...]
AMAZING SUCCESS TODAY!! After my proposal to the Mayor's office, today I was able to confirm our town will install the 1st ever inclusive play area for children in wheelchairs! I am so proud [...]
Dear Friends, As many of you know, Olivia has a rare genetic condition called Goldblatt Syndrome that affects only 17 other known patients world-wide. She is 8 years old, weighs 10kg and measures 67cm. As [...]
Dear Friends, This week we made progress with the adjustments to Olivia's new corset. Although the new version will be very challenging for her to adapt to her everyday life, it will support her [...]
